Looking for advice for JS

1 comments:
js said...
Hello to all...I am going to see Dr. Houser on June 5th for an evaluation and a cotton test. Here is my dilema- after getting great advice from Chris and others on how to manage the symptoms of ens, my symptoms have improved. Granted, much of this improvement, I believe, is because of the weather as it is getting into the 40's on a consistent basis in Illinois. I have been subscribing to the GOLDEN RULE of Mucosa health with great benefit. My question to all of you who have implants, or went for a cotton test and chose not to implant is this... should I wait to get implants if Houser offers or should I go ahead with the implants? I must say, fear does play apart of this, as I am afraid to have another person touch me. Sleep and my ears are probably my two worst symptoms. I should probably add in my throat because my ear fullness/ache wraps around my jaw down into the right side of my throat. Also, has anybody wished they did not get the implants because of nasal stuffiness? I guess this would not be a bad thing for me as I feel wide open, not congested or stuffy.One good thing that has come out of my surgeries is that I do not get sinus infections anymore and when I do get a cold it lasts typically 7-10 days, which is very normal. All the pro's and con's on this subject would be greatly appreciated!! Chris... we have discussed this topic before, so I am sorry if this is redudant. Looking forward to as many opinions as possible. Take care.js
March 30, 2008 8:28 AM


JS, looking forward to hearing what others have to recommend to you or share with you. It is interesting how our symptoms seem so similar, yet I have had more battles with sinus infections than you. To the readers of this blog, just click on the time link to post a comment to JS.....(or to read a comment, for that matter)

See 2nd comment and my reply and TE's reply

nicks said...
Hi ChrisThanks for your efforts and keep them up. Rest assured you are doing good for so many people in this world. If you ever have doubts about your efforts never forget the people whom you are helping. They really do apreciate it even if you don't necessarily find out.

My comment:I received my Hydro Pulse although unfortunately I can't use it! The power specifications it runs from (110V 60Hz) are only suitable for USA (and a few other places like Japan). Its no major drama for me as I will be able to use it when we are in KC, but it would be great if like most electronic gizmos these days it could be manufactured to work on 100-240v 50/60Hz so it could be made available to people all over the world (Europe, Australia/NZ, lots of Asia, Africa etc etc). It would also make good business sense too.I was wondering if through your channels to Dr Grossan you could provide this feedback (perhaps even this blog post).
Thanks, Nick
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Nick, you can email Dr. Grossan directly at ENTconsult@aol.com to report your concerns or copy and paste this blog post. I'm not sure what could be done to remedy the situation. You could try using a neti pot in the meantime for irrigation or saline nasal sprays or Neilmed, etc.; or there is the SinuPulse Elite as well, which is another pulsating irrigator, although I'm not sure of its specifications. Hope that helps. Best wishes on your move to America!

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To Nick:The hydropulse irrigator is also availabe for 220-240v countries. You simply need to look for it on the sites that sel it. It says so clearly and I bought 220v one myself. works great!TE.

See the first comment!

Click on the time link under my March 11 blog post, which will bring you to the first person to comment in the life of this blog!

Great post and suggestions - and thanks for sharing your story, JS! Your story rings all too true among ENS sufferers. Most if not all had no idea what turbinates were prior to our nose surgeries. And I'm interested in that sublingual immunotherapy as well...

A mass, but informative email to 361 accounts....

I just sent an email to 361 people I have either corresponded with about ENS or have signed up as members at emptynosesyndrome.org. I am new to sending out such a large email and I learned that my email account webmaster@emptynosesyndrome.org only allows an email to 250 people per day. That said, it took me 2 days to send out this email. Contents of the email included updates for the emptynosesyndrome.org website (send me an email if you want to get involved with improving the site; serious inquiries only), some treatment ideas, such as Craniosacral therapy and exercise, and a Warm Air Mask that ENS sufferers enjoy a 25% discount on (see the post below).

Some interesting statistics of my 3/10-3/11 mass email:

-An email to 361 email accounts.
-34 email accounts out of order.
-2 people who did not want to receive future mailings (that could potentially help them:)

So, that leaves an email that was sent out to 325 members of the ENS site and those I have corresponded with. I have worked on updating the emptynosesyndrome.org website, between adding information on the Warm Air Mask on the home page, updating the news link, and providng a new cover look to the site. It still needs much improving, but I am going to be taking a break for now, maybe for a week or more so I can focus on my family. I have not gotten more than 6.5 hours per sleep on any night over the past week and it's not because of my children. I am tired and my health isn't terrific because I am tired.

Honestly, I wish I could correspond in depth with everyone that emails me, as I care about you all, but my energy level is really dwindling and I have been getting a fairly high number of emails of late - about 8-10 per day in recent days. While I enjoy corresponding with every person who emails me, it takes time. That said, I have removed my juno email account from the http://www.emptynosesyndrome.net/ so people would not contact me about ENS at my juno account. Rather, I have asked that people primarily contact me about ENS at webmaster@emptynosesyndrome.org, because I cannot access this email account at work, which helps me keep work and home life separate. I have also requested that those who do contact me at my webmaster account primarily contact me if they are interested in assisting with the site (serious inquiries).

There is a solution to all this....if you want to correspond about symptoms, post a comment to my blog; or, there is the emptynosesyndrome.org forum to discuss symptoms and treatments with fellow sufferers as well. In the life of this blog, not a single person has posted a comment. I have been told a few have tried, but failed. If people did post on this blog, I can respond at this blog and it can become interactive. All you have to do is click on the time button underneath any blog post and it will lead you to where you can leave a comment. Thanks for reading...and caring :)

God bless,
Chris

Heart Run, Website, and Warm Air Mask

On a personal note, I completed a 3-mile run as part of the Heart Run and Walk in Central New York this past Saturday (http://www.uticaheartrunwalk.org/). Unfortunately, I did it all wrong. I did no training prior to the run and went into it cold turkey - and I mean "cold turkey!" My legs are still somewhat sore from this run! Normally if I train up to being able to run 3 miles, it is really not a problem. I should not be sore from that and do it with grace and ease...yeah right. I was not planning on running in it, to be honest, as I was expecting 2-5 inches of snow the night before and additional snow (and cold) on the day of. My wife woke me up around 7:20 AM and informed me that it was mild outdoors with only rain rather than snow and, to my surprise, it was. So I got up after only 6 hours of sleep and prepared for the run. Despite all this, I enjoyed it and was glad to do it for a good cause. And my nasal breathing felt good for the remainder of the day because of the increased blood flow to my nose that the running brought, while my throat was extra irritated from the cold air. Enough about that....

If you have been following of late, I have taken over as webmaster of http://www.emptynosesyndrome.org/ as of March 1st. I'm not sure how long I will remain webmaster, but it is privilege and while I continue on as the webmaster of that site, I'll do my best at maintaining it and keeping its contents fresh. The site gets far more traffic than this blog, about 200-300 unique visitors per day. However, I really am limited with time in improving it, given my family responsibilities of my wife and three little kiddos and my job; if others are willing to pitch in, it can be improved. Today I sent out an email to 150+ members of the ENS site announcing this transition of webmaster from David Lemberg to myself, and tomorrow I will send out another email to 150+ members. I would send it out all at once, but the server does not allow me to send out an email to more than 250 members on one day, so it takes 2 days to do that.

On the home page of http://www.emptynosesyndrome.org/, I have added a link and product information for a warm air mask from http://www.polarwrap.com/. Polar Wrap has offered ENS sufferers a 25% discount on this mask. I sure hope others take advantage of this offer and enjoy breathing in warm air as I have of late....if only I had worn it for the Heart run (sigh)....